Teenager with Cystic Fibrosis talks about life, her goal to help find a cure

KANSAS CITY, Mo. - Kaia Marchbanks, 14, was diagnosed with Cystic Fibrosis (CF) when she was a baby. She said life is not easy as a teenager with CF and is hoping that people will help find a cure by supporting the Great Strides Cystic Fibrosis 5K Walk and Run on Saturday, May 10 at Thies Park in Kansas City, Mo.

Kaia was my workout buddy this week for my Workout Wednesday segment. We did a walking workout at the Jewish Community Center's Fitness Center in Overland Park, Kan. 

Kaia was also on the air Thursday with me on the Midday News to talk about her illness and the upcoming walk.

Cystic Fibrosis is a disease passed down through families that causes thick, sticky mucus to build up in the lungs, digestive tract and other areas of the body. It is one of the most common chronic lung diseases in children and young adults. It is a life-threatening disorder.

"It's hard being a teenager with CF because I cannot do some of the things I like to do like running," explained Kaia.

The Kansas City teenager has to have breathing treatments every morning and every night.

"I really want people to come to the Walk because we need to raise money to find a cure," she added.

"We have to raise our own money because we don't get much funding from the government and other research groups;,"  Williams, Development Director of the Cystic Fibrosis Foundation of Greater Kansas City, said. 

The Great Strides CF  5K Walk and Run is on Saturday, May 10 at Thies Park.  Registration begins at 9:30.  The event begins at 10:30.  For more information visit the CF Foundation Heartland Chapter's website.

i enjoyed working out with Kaia.  She is wise beyond her years and a great inspiration.

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