KANSAS CITY, MO — An estimated 30 million Americans suffer from rare disease. That is one in every 10 people, with children making up half of the population with rare diseases. Often times, those who have a rare disease or have a loved one with a rare disease feel isolated and alone. That’s where Rare KC comes in. They are working to activate a change in the lives of those challenged by genetic conditions and diseases. Today we’re joined by Founder Kelly Ranallo and Janell Ridenour, member of Rare KC and mother of Theo – who is living with a rare disease. Rare KC is hosting their annual summit on Monday March 4 at the Kauffman Foundation. Tickets can be purchased at RareKC.org.
An estimated 30 million Americans suffer from rare disease. That is one in every 10 people, with children making up half of the population with rare diseases. Often times, those who have a rare disease or have a loved one with a rare disease feel isolated and alone. That’s where Rare KC comes in. They are working to activate a change in the lives of those challenged by genetic conditions and diseases. Today we’re joined by Founder Kelly Ranallo and Janell Ridenour, member of Rare KC and mother of Theo – who is living with a rare disease. Rare KC is hosting their annual summit on Monday March 4 at the Kauffman Foundation. Tickets can be purchased at RareKC.org.
Posted at 4:25 PM, Feb 28, 2019
and last updated 2019-03-01 12:44:34-05
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