Each day is a big milestone for Keva and Matthew David.
"Every day you value the opportunity that you have," said Matthew.
Their one-month old son Nash is in the Pediatric Intensive Care Unit at Children's Mercy Hospital. He was born with Hypoplastic Left Heart Syndrome, a congenital heart defect (CHD).
"Mentally, emotionally, physically, you get worn down. You see your child and you can't help them. You feel helpless as a parent," said Kiva.
CHD affects about 1 in 100 children, according to Remington's Heart, a local nonprofit foundation based in Belton, Missouri. The foundation said it's more prevalent than childhood cancer.
"CHDs were nothing we had ever heard of and now it's all we hear of," said Brandon Craft.
Remington's Heart is named after Craft's youngest daughter, who was also born with Hypoplastic Left Heart Syndrome.
"You kind of put the outside world on hold. Your world is inside the hospital," said Craft. "But the bills come in. That should not be [parent's] worry. Their worry should be their child."
Remington's Heart helps pay bills. They also offer emotional support for families, like the Davids.
"It just made us feel like we're not alone," said Keva.